Links

AMDA – Acid Maltase Deficiency Association

Association for Glycogen Storage Disease (France, ‘Association Francophone des Glycogénoses’)

Association for Glycogen Storage Disease (UK)

Canadian Association of Pompe

Cie2492

Hope Travels – Pompe Awareness (Facebook group)

International Pompe Association

Klosterwald

Koko The Gorilla Foundation

Mane Chance Sanctuary

Pompe Alliance

Pompe Austria

Pompe Community

Pompe Deutschland (Germany)

Pompe Support Network (UK)

Pompe Warrior Foundation

Prinses Beatrix Spierfonds

Rare Disease Day

Red Squirrel Survival Trust

World Pompe Organisation (Members and Contacts)

World Pompe Organisation Publications (in French)

World Pompe Organisation Publications (in German)